Let’s accelerate metastatic breast cancer research together

MBC Connect is an interactive, web and mobile-friendly patient registry, where you can share information about your MBC disease history, experiences, and quality of life.

Join the Registry
Explore the Data
spacer25

What is MBC Connect?

MBC Connect is a free, web and mobile-friendly tool for the estimated 155,000 men and women living with MBC in the U.S. It helps you store important information about your MBC disease history, experiences, as well as your quality of life. MBC Connect also provides researchers and clinicians with a powerful database that can drive research, discoveries, and advances hoped for by so many in the MBC community.

How MBC Connect Works

Surveys-Shadow-2
Be Part of a Movement

You have the power—in the palm of your hand—to contribute valuable information to advance MBC research

Designed By Patients, For Patients

Surveys are brief and easy-to-use, and you can complete them at your own pace

Treatments-Shadow
Diseaase2-Shadow
Share Your MBC Experience

Be the author of your MBC story and share it easily with your family or health care team — printed out or on your device

Receive Custom-Tailored Insights

Based on information you enter, we'll send you personalized insights and alerts with MBC news, events, and clinical trial opportunities

Insights2-Shadow

“MBC Connect can help patients feel connected to fellow MBC patients, and their physicians and care teams, like never before.”

TimothyJ-Pluard-BW
Timothy J. Pluard, MD Medical Director of Saint Luke’s Hospital Koontz Center for Advanced Breast Cancer

“As a person living with MBC each day,
I believe that MBC Connect will help accelerate research for the benefit of a community that demands progress.”

ShirleyM-Sept2018 (3)
Shirley Mertz President, Metastatic Breast Cancer Network

“We're working hard to unlock the mysteries
of a marginalized patient population that's
only received a fraction of breast cancer
research funding.”

Picture1
Marc Hurlbert, PhD Chairman, Metastatic Breast Cancer Alliance

Frequently asked questions

What is MBC Connect?

MBC Connect is a free mobile and web based tool for the metastatic breast cancer (MBC) community. Available in English and Spanish, the app not only helps you store important disease and health information, it also provides researchers and clinicians with a powerful real-time database that can drive research, discoveries and advances hoped for by the estimated 155,000 women and men in the U.S. who are living with MBC.

How will MBC Connect benefit the MBC community?

MBC Connect empowers patients and caregivers by providing the opportunity to be active and engaged partners in important research. At the same time, researchers, and health care professionals benefit in two ways: (1) they can access a real-time, de­identified database that can drive research and discoveries; and (2) they can use it to identify patterns, trends, and strategies that may effectively treat different types of patients. In addition, researchers can leverage the database to submit additional approved survey questions.

How is MBC Connect different from traditional registries?

MBC Connect is interactive. It provides you with the opportunity to re­engage and keep your data updated in real time as your MBC experience changes. For instance, you can respond to simple surveys that capture information about who you are, your history with MBC, and your quality of life as an MBC patient. You can also build a holistic treatment profile that captures information about your treatments over time. To preview the survey questions and answer options please click HERE. MBC Connect also provides you with regular, personalized insights and alerts about potential relevant clinical trial opportunities, as well as information about MBC webinars and events.

Which organization is responsible for this registry?

MBC Connect is an initiative led by the MBC Alliance. The MBC Alliance was formed in 2013 and is the largest coalition in the U.S. focused on metastatic breast cancer. The membership comprises nonprofit organizations, pharmaceutical and biotech companies, and individual patient advocates or patients living with MBC. Click HERE to view a listing of the current members. The goals of the MBC Alliance are to (i) advance MBC research, (ii) increase access to MBC information and support services, and (iii) increase awareness of how MBC is different from early stage breast cancer.

The MBC Alliance is striving to improve the lives of, and outcomes for, those living with MBC and their families through increasing awareness and education about the disease, and advancing policy and strategic coordination of research funding. For more information, visit www.mbcalliance.org.

More FAQs

Your privacy is important

MBC Connect is designed to keep your information secure and confidential. We use encryption technology to keep your data safe while it is in transit and when it is stored. The researcher portal displays results in both aggregate and de-identified formats. Our de-identification method follows guidance provided by the U.S. Department of Health and Human Services (HHS) and complies with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule. At any point, you can request to opt out of the registry by visiting “Your Profile”. If you have any questions, please email us at [email protected]

Get started today.

Join the Registry
Explore the Data

Download the MBC Connect app for your iOS or Android device

spacer25
MBC Connect is powered by:
Follow MBC Alliance