Information Collected by MBCA
Automatic Collection of Anonymous Information
The Metastatic Breast Cancer Alliance has a strong commitment to internet privacy. When you visit our website, like when you visit most other websites, certain anonymous information about your visit may be automatically logged, including the server name and IP address through which you access the internet (such as “aol.com” or “earthlink.net”), the date and time you access our site, the pages you access while at our website, the Internet address of the website from which you linked directly to our site, the Internet address of the website to which you link if and when you leave this website by clicking on a link at this website. This information is not personally identifiable. We use this information to generate statistics and measure site activity to improve the usefulness of the MBCA site to our visitors.
Personally Identifiable Information
Your submission of personally identifiable information to us is entirely your choice. You may visit and browse our website without revealing any personally identifiable information about yourself to us. However, you may also choose to disclose personally identifiable information about yourself by conducting business with us. We may collect personally identifiable information about you if you communicate such information to us and/or subscribe to receive our newsletter or other communications.
The personally identifiable information we collect may consist of contact information (such as your name, email address, postal address or telephone number), your preferences (such as where you go on our site), and any other information you communicate to us (for example in an email or phone call).
This information is also subject to the terms of this Privacy Statement.
Information Use and Disclosure
The Metastatic Breast Cancer Alliance makes every effort to insure the secure collection and transmission of sensitive user information using industry accepted data collection and encryption methodologies.
MBCA does not sell or otherwise disclose user information outside the organization. This policy has no exceptions. We do not sell or exchange your information with any other organization, public, private.
Personally identifiable information we collect may be used for such purposes as:
- providing services and support to users;
- improving our website, including tailoring it to users’ preferences;
- providing users with information through our Newsletter and other communications;
- responding to your questions inquiries, comments and instructions;
- maintaining the security and integrity of our systems;
- pursuant to legal process or any other purpose required by law.
Please see the Choice/Opt-Out section below for your options regarding the use of personally identifiable information about you.
In order to provide service to you, we will occasionally send you communications related to security or the administration of our website. From time to time, we may also wish to send you our newsletter or other communications such as those concerning upcoming events. If you do not wish to receive our newsletter or such other communications, please send an email containing your request to [email protected]
MBCA’s server, or the servers of companies that we use to help us operate our site, may place a “cookie” on your computer. A “cookie” is a small piece of data that can be sent by a web server to your computer, which then may be stored by your browser on your computer’s hard drive. Cookies allow our computer to recognize your computer while you are on our website and help customize your online experience and make it more convenient for you. The information collected from cookies may also be used to improve the functionality of our website.
Most web browser applications (such as Microsoft Internet Explorer and Google Chrome) have features that can notify you when you receive a cookie or prevent cookies from being sent. If you disable cookies, however, you may not be able to use certain personalized functions of this website.
Our website may contain links to other websites controlled by third parties. While we try to link only to websites of reputable organizations, please be aware that MBCA is not responsible for the privacy practices or the content of other websites. We encourage you to read the privacy statements provided by other websites before you provide personally identifiable information to them. We will endeavor to inform you when you are leaving our website.
We maintain physical, electronic and procedural safeguards to help protect your personal information. Among other things, we:
use industry-standard secure encryption software to protect information that you submit to us over the secure portions of our website;
maintain our web servers in an environment in which access to such servers is limited to authorized individuals and is subject to a variety of electronic, physical and procedural security measures.
In spite of the safeguards that we maintain, no data transmission over the Internet or any wireless network is 100% secure. Accordingly, we cannot ensure or warrant the security of any information that you transmit to us and you must do so at your own risk. However, once we have received your information, we will use commercially reasonable efforts to protect its security.
This website is designed for use by persons aged 13 or older. We do not solicit or knowingly collect personally identifiable information from children under the age of 13. If we nevertheless receive personally identifiable information from an individual who indicates that he or she is, or whom we otherwise have reason to believe is, under the age of 13, we will delete such information from our systems.
Participation in MBC Connect
The MBC Alliance has developed MBC Connect, an interactive, web- and mobile-friendly patient registry. MBC Connect will collect data from registry participants, both patients with MBC and their caregivers, about various aspects of living with MBC. The data collected will be de-identified and shared with scientists and other interested parties to accelerate research that will improve the lives of people living with MBC. The study and the MBC Connect app are designed for people 18 years of age or older.
Participants in MBC Connect are entitled to privacy regarding data collected by the app and website. Consent documents are available that explain how participant information in MBC Connect is collected, used, shared, stored, and deleted upon request by MBC Connect participants, and how the user can opt out and be removed as a participant in MBC Connect. For more details about the rights of participants in MBC Connect, click HERE if you are an MBC patient and HERE if you are a caregiver.
MBCA reserves the right to modify or supplement this policy at any time. If we make a material change to the terms of this policy, we will post a notice on our homepage and link to the new policy.
Effective date: 09/13/2018